Metadata

Name Spina bifida
Type Disease or Syndrome
Group Perinatal
Data Sources

Clinical Terminologies OPCS-4
Read Version 2
ICD-10
Codelists
Valid Event Data Range 01/01/1999 - 01/07/2016
Sex Female
Male
Authors Kuan V, Denaxas S, Gonzalez-Izquierdo A, Direk K, Bhatti O, Husain S, Sutaria S, Hingorani M, Nitsch D, Parisinos C, Lumbers T, Mathur R, Sofat R, Casas JP, Wong I, Hemingway H, Hingorani A
Agreement Date 20 May 2019
Version (UUID) 1 (dBF5MaNFLkiqN8qTTm4uXD)

Primary care

Disease Readcode Medcode ReadcodeDescr Category
Spina bifida 7010111.0 98265.0 Insertion of Halber valve for spina bifida Procedure for Spina bifida
Spina bifida 7043100.0 5307.0 Closure of spinal myelomeningocele Procedure for Spina bifida
Spina bifida 7043200.0 29633.0 Closure of spinal meningocele Procedure for Spina bifida
Spina bifida 7043.00 9298.0 Repair of spina bifida Procedure for Spina bifida
Spina bifida 7043y00 50672.0 Other specified repair of spina bifida Procedure for Spina bifida
Spina bifida 7043z00 62742.0 Repair of spina bifida NOS Procedure for Spina bifida
Spina bifida P100000 5306.0 Spina bifida with hydrocephalus, unspecified Diagnosis of Spina bifida
Spina bifida P100100 109243.0 Cervical spina bifida with hydrocephalus Diagnosis of Spina bifida
Spina bifida P100200 50565.0 Thoracic spina bifida with hydrocephalus Diagnosis of Spina bifida
Spina bifida P100300 57113.0 Lumbar spina bifida with hydrocephalus Diagnosis of Spina bifida
Spina bifida P100.00 42497.0 Unspecified spina bifida with hydrocephalus Diagnosis of Spina bifida
Spina bifida P100z00 98298.0 Spina bifida with hydrocephalus NOS Diagnosis of Spina bifida
Spina bifida P101.11 63513.0 Closed spina bifida with Arnold-Chiari malformation Diagnosis of Spina bifida
Spina bifida P102200 57243.0 Thoracic spina bifida with hydrocephalus - open Diagnosis of Spina bifida
Spina bifida P102300 103284.0 Lumbar spina bifida with hydrocephalus - open Diagnosis of Spina bifida
Spina bifida P102400 60623.0 Sacral spina bifida with hydrocephalus - open Diagnosis of Spina bifida
Spina bifida P102.00 98811.0 Spina bifida with hydrocephalus - open Diagnosis of Spina bifida
Spina bifida P102.11 104943.0 Fissured spine with hydrocephalus Diagnosis of Spina bifida
Spina bifida P102.13 52683.0 Myelocele with hydrocephalus Diagnosis of Spina bifida
Spina bifida P102.14 53471.0 Rachischisis with hydrocephalus Diagnosis of Spina bifida
Spina bifida P102z00 47288.0 Spina bifida with hydrocephalus - open NOS Diagnosis of Spina bifida
Spina bifida P103300 105767.0 Lumbar spina bifida with hydrocephalus - closed Diagnosis of Spina bifida
Spina bifida P103400 72928.0 Sacral spina bifida with hydrocephalus - closed Diagnosis of Spina bifida
Spina bifida P103.00 93902.0 Spina bifida with hydrocephalus - closed Diagnosis of Spina bifida
Spina bifida P103z11 90482.0 Thoracolumbar spina bifida with hydrocephalus - closed Diagnosis of Spina bifida
Spina bifida P104.00 102628.0 Spina bifida with hydrocephalus of late onset Diagnosis of Spina bifida
Spina bifida P105.00 56362.0 Spina bifida with stenosis of aqueduct of Sylvius Diagnosis of Spina bifida
Spina bifida P10..00 46790.0 Spina bifida with hydrocephalus Diagnosis of Spina bifida
Spina bifida P10y000 59218.0 Dandy - Walker syndrome with spina bifida Diagnosis of Spina bifida
Spina bifida P10y.00 73085.0 Other specified spina bifida with hydrocephalus Diagnosis of Spina bifida
Spina bifida P10z.00 64717.0 Spina bifida with hydrocephalus NOS Diagnosis of Spina bifida
Spina bifida P110000 101013.0 Spina bifida without hydrocephalus, site unspecified Diagnosis of Spina bifida
Spina bifida P110100 68221.0 Cervical spina bifida without mention of hydrocephalus Diagnosis of Spina bifida
Spina bifida P110200 96709.0 Thoracic spina bifida without mention of hydrocephalus Diagnosis of Spina bifida
Spina bifida P110300 96407.0 Lumbar spina bifida without mention of hydrocephalus Diagnosis of Spina bifida
Spina bifida P110z00 95018.0 Unspecified spina bifida without hydrocephalus NOS Diagnosis of Spina bifida
Spina bifida P111.00 53578.0 Spinal hydromeningocele Diagnosis of Spina bifida
Spina bifida P112.00 67878.0 Hydromyelocele Diagnosis of Spina bifida
Spina bifida P113000 53929.0 Spinal meningocele of unspecified site Diagnosis of Spina bifida
Spina bifida P113100 67351.0 Cervical spinal meningocele Diagnosis of Spina bifida
Spina bifida P113200 91600.0 Thoracic spinal meningocele Diagnosis of Spina bifida
Spina bifida P113300 61862.0 Lumbar spinal meningocele Diagnosis of Spina bifida
Spina bifida P113.00 6866.0 Spinal meningocele Diagnosis of Spina bifida
Spina bifida P113z00 50365.0 Spinal meningocele NOS Diagnosis of Spina bifida
Spina bifida P114000 99332.0 Meningomyelocele of unspecified site Diagnosis of Spina bifida
Spina bifida P114100 107144.0 Cervical meningomyelocele Diagnosis of Spina bifida
Spina bifida P114200 99299.0 Thoracic meningomyelocele Diagnosis of Spina bifida
Spina bifida P114300 47827.0 Lumbar meningomyelocele Diagnosis of Spina bifida
Spina bifida P114.00 9722.0 Meningomyelocele Diagnosis of Spina bifida
Spina bifida P114z00 57611.0 Meningomyelocele NOS Diagnosis of Spina bifida
Spina bifida P115100 94598.0 Cervical myelocele Diagnosis of Spina bifida
Spina bifida P115300 66516.0 Lumbar myelocele Diagnosis of Spina bifida
Spina bifida P115.00 31775.0 Myelocele Diagnosis of Spina bifida
Spina bifida P115z00 73712.0 Myelocele NOS Diagnosis of Spina bifida
Spina bifida P116100 107377.0 Cervical myelocystocele Diagnosis of Spina bifida
Spina bifida P116300 101493.0 Lumbar myelocystocele Diagnosis of Spina bifida
Spina bifida P116.00 59380.0 Myelocystocele Diagnosis of Spina bifida
Spina bifida P116z00 109893.0 Myelocystocele NOS Diagnosis of Spina bifida
Spina bifida P117200 95478.0 Thoracic spina bifida without hydrocephalus - open Diagnosis of Spina bifida
Spina bifida P117300 69397.0 Lumbar spina bifida without hydrocephalus - open Diagnosis of Spina bifida
Spina bifida P117400 71525.0 Sacral spina bifida without hydrocephalus - open Diagnosis of Spina bifida
Spina bifida P117.00 99281.0 Spina bifida without hydrocephalus - open Diagnosis of Spina bifida
Spina bifida P117.11 56386.0 Fissured spine Diagnosis of Spina bifida
Spina bifida P117.12 67708.0 Rachischisis Diagnosis of Spina bifida
Spina bifida P117z00 73608.0 Spina bifida without hydrocephalus - open NOS Diagnosis of Spina bifida
Spina bifida P118000 69370.0 Unspecified spina bifida without hydrocephalus - closed Diagnosis of Spina bifida
Spina bifida P118100 72018.0 Cervical spina bifida without hydrocephalus - closed Diagnosis of Spina bifida
Spina bifida P118300 65936.0 Lumbar spina bifida without hydrocephalus - closed Diagnosis of Spina bifida
Spina bifida P118400 70923.0 Sacral spina bifida without hydrocephalus - closed Diagnosis of Spina bifida
Spina bifida P118.00 48609.0 Spina bifida without hydrocephalus - closed Diagnosis of Spina bifida
Spina bifida P118z00 65246.0 Spina bifida without hydrocephalus - closed NOS Diagnosis of Spina bifida
Spina bifida P11..00 5431.0 Spina bifida without mention of hydrocephalus Diagnosis of Spina bifida
Spina bifida P11y.00 99894.0 Other specified spina bifida without hydrocephalus Diagnosis of Spina bifida
Spina bifida P11y.11 43593.0 Syringomyelocele Diagnosis of Spina bifida
Spina bifida P11z.00 98280.0 Spina bifida without mention of hydrocephalus NOS Diagnosis of Spina bifida
Spina bifida P1...00 3947.0 Spina bifida Diagnosis of Spina bifida
Spina bifida P1z..00 21802.0 Spina bifida NOS Diagnosis of Spina bifida
Spina bifida PG17.00 3336.0 Spina bifida occulta Diagnosis of Spina bifida
Spina bifida Pyu0400 106579.0 [X]Unspecified spina bifida with hydrocephalus Diagnosis of Spina bifida

Secondary care

Diagnoses

Disease ICD10code ICD10codeDescr Category
Spina bifida Q05 Spina bifida Diagnosis of Spina bifida
Spina bifida Q76.0 Spina bifida occulta Diagnosis of Spina bifida

Procedures

Disease OPCS4code OPCS4codeDescr Category
Spina bifida A49 Repair of spina bifida Diagnosis of Spina bifida
Spina bifida A49.1 Freeing of spinal tether NEC Diagnosis of Spina bifida
Spina bifida A49.2 Closure of spinal myelomeningocele Diagnosis of Spina bifida
Spina bifida A49.3 Closure of spinal meningocele Diagnosis of Spina bifida
Spina bifida A49.4 Complex freeing of spinal tether Diagnosis of Spina bifida
Spina bifida A49.8 Other specified repair of spina bifida Diagnosis of Spina bifida
Spina bifida A49.9 Unspecified repair of spina bifida Diagnosis of Spina bifida

Implementation

At the specified date, a patient is defined as having had 'Spina bifida' IF they meet the criteria for any of the following on or before the specified date. The earliest date on which the individual meets any of the following criteria on or before the specified date is defined as the first event date:

Primary care
1. 'Spina bifida' diagnosis or history of diagnosis or procedure during a consultation 
OR
Secondary care (ICD10)
1. ALL diagnoses of 'Spina bifida' or history of diagnosis during a hospitalization
OR
Secondary care (OPCS4)
1. ALL procedures for 'Spina bifida' during a hospitalization

Publications

Kuan V., Denaxas S., Gonzalez-Izquierdo A. et al. A chronological map of 308 physical and mental health conditions from 4 million individuals in the National Health Service. The Lancet Digital Health - DOI 10.1016/S2589-7500(19)30012-3